| Onderzoeks instelling | UMC Utrecht locatie: Wilhelmina Kinderziekenhuis |
| Projectcoördinator | Dr. Janjaap van der Net en Drs. Wim Groen |
Contact adres en telefoonnummer
| Kinderbewegingscentrum (KBC) kamer KB02.055.0, Postbus 85090, 3508 AB Utrecht, T +31.88.7554030 |
| Vraagstelling | What are test-retest reliability, internal consistency, and inter-rater agreement of the newly developed pedHAL in a Dutch sample of children and adolescents with Haemophilia? |
Globale beschrijving van de patiënten populatie, onderzoeksmethode en werkplan | 50 Dutch children with hemophilia A or B and their parents will be asked to fill in the newly developed hemophilia activities list for children (ped-HAL). This will be done during regular vistits at the Van Creveld Clinic. A group of 15 patients and their parents will be asked to fill out the ped-HAL again a week after they filled out the first one. The response of all questionnaires will be analysed on internal consistency, test-retest reliability, and patient-parent concordance. |
| Stagewerkzaamheden | |
Beknopte literatuur
| Terwee, C. B., Bot, S. D. M., de Boer, M. R., van der Windt, D. A. W. M., Knol, D. L., Dekker, J. et al. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60, 34-42. |
Solliciteren
| Ben je geïnteresseerd in dit project, stuur dan een sollicitatiebrief naar: j.vandernet@umcutrecht.nl of w.g.groen@umcutrecht.nl |