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dr. M. (Marjolijn) Ketelaar

dr. M. (Marjolijn) Ketelaar

Associate Professor
dr. M. (Marjolijn) Ketelaar
  • Revalidatiegeneeskunde Onderzoek

Research Programs

Biography

Biography

Marjolijn Ketelaar is Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation (www.kcrutrecht.nl), and Scientist at CanChild, Center for Childhood Disability Research, McMaster University, Hamilton, Canada (www.canchild.ca)

Leader of research program on Family Empowerment and Program leader Pediatric Rehabilitation Research.


Her research interests include family-centered services, and the role of the family in the development of children with disabilities, with a focus on Brain Based Developmental Disabilities (e.g., Cerebral Palsy) and neuromuscular diseases (e.g., SMA).

She strongly believes in collaboration with patients, families, clinicians, and service providers in all stages of the research cycle, to optimise relevance and usefulness of research, and to improve clinical practice.

This is one of the main purposes of CP-Net, a network of parents and persons with CP, clinicians and researchers, she has founded founded in 2014, together with M. Klem (director patient organisation BOSK), Prof. J.G. Becher, Professor in Pediatric Rehabilitation Medicine.
www.CP-Net.nl


She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths and adults with cerebral palsy
www.perrin.nl

 

Publications:
www.researchgate.net

Twitter:
@Marjolijnketela

 

Research line

Neurodevelopmental disorders

Most recent key publications

Pozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter JW, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano RJ, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M. Building a culture of engagement at a research centre for childhood disability. Res Involv Engagem. 2021 Nov 6;7(1):78. doi: 10.1186/s40900-021-00319-5. PMID: 34742354.

Ketelaar M, Smits DW, Van Meeteren K, Klem M, Alsem MW. Involvement of young people and families in all stages of research: What, why and how? In: Imms C and Green D (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. London: MacKeith Press, 2020, p 105-117. ISBN: 9781911612162

 Alsem M, Wong Chung R, Rentinck I, Reinders-Messelink H, Willemen A, Ketelaar M. Gezin en Samenleving. In: Hadders-Algra M, Pangalila RF, Becher JG, van der Burg JJW, Hielkema T, de Moor J (red), Kinderrevalidatie, 6de druk. Assen: Koninklijke van Gorcum, 2021, p 307-322. ISBN: 978-90-232-5776-9

Nguyen L, Jack S, Ketelaar M, di Rezze B, Soper AK, Gorter JW. Understanding the experiences of youth with autism spectrum disorder in peer mentorship programs during the transition to adulthood: a meta-ethnography. Child: Care, Health and Development 2020; 46(6):667-681. doi: 10.1111/cch.12804.

Resch C, Van Kruijsbergen M, Ketelaar M, Hurks P, Adair B, Imms C, De Kloet A, Piskur B, Van Heugten C. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Developmental Medicine & Child Neurology 2020; 62: 434-444. doi: 10.1111/dmcn.14465

Smits DW, Van Meeteren K, Klem M, Alsem MW, Ketelaar M. Designing a Tool to Support Patient and Public Involvement in Research Projects: The Involvement Matrix. Research Involvement and Engagement 2020; 6: 30. doi: 10.1186/s40900-020-00188-4.

Smits DW, Gorter JW, Riddell CA, Voorman JM, Rosenbaum PL, Palisano RJ, Walter SD, Hanna SE, van Wely L, Ketelaar M. Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. Lancet Child Adolesc Health. 2019 Jun 6. pii: S2352-4642(19)30122-1. doi: 10.1016/S2352-4642(19)30122-1. [Epub ahead of print]

Gorp M van, Van Wely L, Dallmeijer AJ, de Groot V, Ketelaar M, Roebroeck ME; Perrin-Decade study group. Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol. 2019 Feb;61(2):194-203. doi: 10.1111/dmcn.14004.

Wintels SC, Smits DW, van Wesel F, Verheijden J, Ketelaar M; PERRIN PiP Study Group. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. . 2018 Dec; 21(6):1024-1034. doi: 10.1111/hex.12796.

 

Side Activities

  • Board member of CP-Net (2013 – present)

  • Member of the Scientific Advisory Committee for CHARM, Research Centre for Habilitation and Rehabilitation Models & Services; University of Oslo, Norway

  • Member of the board for the Guideline Spastic Cerebral Palsy;  Nederlandse Vereniging van Revalidatieartsen, 2015

  • Member of the Steering Committee CP-Register Netherlands. VUMC Amsterdam and BOSK (2016 – present)

  • Regular reviewer for several international journals (including Developmental Medicine and Child Neurology; Child: Health, Care and Development; Disability and Rehabilitation; BMC Pediatrics; BMJ Open) and for several national and international foundations/granting agencies.

  • Former Board member of Scientific Committee European Academy of Childhood Disability (EACD) (2010-2017)

  • Former Board member of Dutch Academy of Childhood Disability (Dutch-ACD) (2011-2016)

 

Fellowship and Awards

- "Hoofdprijs" BCRM 2017. Outreachprijs speerpunt Hersenen UMC Utrecht. 

- KFA Price Innovation in Pediatric Rehabilitation (2010)

- ZonMw grants (Main applicant), 2000, 2004, 2007, 2010

- ISED Institute for the Study of Education and Human Development: Best scientific paper (1999)

Research Output (229)

Building a culture of engagement at a research centre for childhood disability

Pozniak Kinga, Buchanan Francine, Cross Andrea, Crowson Jennifer, Galuppi Barb, Grahovac Danijela, Gorter Jan Willem, Hlyva Oksana, Ketelaar Marjolijn, Kraus de Camargo Olaf, Krpan Mesic Manda, Martens Rachel, McCauley Dayle, Nguyen Linda, Palisano Robert J, Phoenix Michelle, Putterman Connie, Rosenbaum Peter, Sprung Jennifer, Strohm Sonya, Teplicky Rachel, Thomson Donna, Wright Marilyn Dec 2021, In: Research involvement and engagement. 7 , p. 1-15

Parental perceptions on the value of neonatal brain MRI

Aalbers Vera W., Rapuc Sara, Dudink Jeroen, Tataranno Maria Luisa, Ketelaar Marjolijn, de Bijl-Marcus Karen A., Benders Manon J. N. L. Oct 2021, In: Pediatric Research. 90 , p. 7-7

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability:protocol of a scoping review

Nguyen Linda, Bootsma Jael, Di Rezze Briano, Jack Susan, Ketelaar Marjolijn, Gorter Jan Willem 7 Jul 2021, In: BMJ Open. 11 5 p.

Role of parents in fatigue of children with a chronic disease:A cross-sectional study

Kramer Niels, Nijhof Sanne L., Van De Putte Elise M., Ketelaar Marjolijn, Grootenhuis Martha A., Van Der Ent Kors, Swart Joost F., Van Grotel Martine, Dalmeijer Geertje W., Nap-Van Der Vlist Merel M. 21 May 2021, In: BMJ paediatrics open. 5 , p. 1-9

Professionals' motivation to support parental self-management regarding children with physical disability in Dutch rehabilitation services:‘Please mind your gap’

Wong Chung R W, Willemen A M, Voorman J M, Ketelaar M, Becher J G, Schuengel C 20 May 2021, In: Child: Care, Health and Development. 47 , p. 685-696 12 p.

Sleep problems in children with cerebral palsy and their parents

Hulst Raquel Y, Gorter Jan Willem, Voorman Jeanine M, Kolk Eveline, Van Der Vossen Sanne, Visser-Meily Johanna M A, Ketelaar Marjolijn, Pillen Sigrid, Verschuren Olaf 15 May 2021, In: Developmental Medicine and Child Neurology. 63 , p. 1344-1350 7 p.

Prognostic value of brain abnormalities for cognitive functioning in cerebral palsy:A prospective cohort study

Moll Irene, Voorman Jeanine M, Ketelaar Marjolijn, van Schie Petra E, Gorter Jan Willem, Lequin Maarten H, de Vries Linda S, Vermeulen R Jeroen 16 Mar 2021, In: European Journal of Paediatric Neurology. 32 , p. 56-65 10 p.

Parents' perspectives on nusinersen treatment for children with spinal muscular atrophy

van Kruijsbergen Mette, Schröder Carin D, Ketelaar Marjolijn, van der Pol W Ludo, Cuppen Inge, van der Geest Annette, Asselman Fay-Lynn, Fischer Maarten J, Visser-Meily Johanna M A, Kars Marijke C 2021, In: Developmental Medicine and Child Neurology. 63 , p. 816-823 8 p.

Exploring key elements of approaches that support childrens' preferences during painful and stressful medical procedures:A scoping review

Segers Elisatbeth W, Ketelaar Marjolijn, Taddio Anna, de Man Marjorie A C P, Schoonhoven Lisette, van de Putte Elise M, van den Hoogen Agnes 2021, In: Journal of pediatric nursing. 62 , p. e16-e24

Evaluating communication partner training in healthcare centres:Understanding the mechanisms of behaviour change

van Rijssen Maren, Ketelaar Marjolijn, Vandenborre Dorien, Oostveen Judith, Veldkamp Marloes, van Ewijk Lizet, Visser-Meily Johanna M A, Gerrits Ellen 2021, In: International journal of language & communication disorders. 56 , p. 1190-1203 14 p.

All research output

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