dr. M. (Marjolijn) Ketelaar

dr. M. (Marjolijn) Ketelaar

Associate Professor
dr. M. (Marjolijn) Ketelaar
  • Revalidatiegeneeskunde Onderzoek

Research Programs



Marjolijn Ketelaar is Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation (, and Scientist at CanChild, Center for Childhood Disability Research, McMaster University, Hamilton, Canada (

Leader of research program on Family Empowerment and Program leader Pediatric Rehabilitation Research.

Her research interests include family-centered services, and the role of the family in the development of children with disabilities, with a focus on Brain Based Developmental Disabilities (e.g., Cerebral Palsy) and neuromuscular diseases (e.g., SMA).

She strongly believes in collaboration with patients, families, clinicians, and service providers in all stages of the research cycle, to optimise relevance and usefulness of research, and to improve clinical practice.

This is one of the main purposes of CP-Net, a network of parents and persons with CP, clinicians and researchers, she has founded founded in 2014, together with M. Klem (director patient organisation BOSK), Prof. J.G. Becher, Professor in Pediatric Rehabilitation Medicine.

She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths and adults with cerebral palsy





Research line

Neurodevelopmental disorders

Most recent key publications

Pozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter JW, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano RJ, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M. Building a culture of engagement at a research centre for childhood disability. Res Involv Engagem. 2021 Nov 6;7(1):78. doi: 10.1186/s40900-021-00319-5. PMID: 34742354.

Ketelaar M, Smits DW, Van Meeteren K, Klem M, Alsem MW. Involvement of young people and families in all stages of research: What, why and how? In: Imms C and Green D (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. London: MacKeith Press, 2020, p 105-117. ISBN: 9781911612162

 Alsem M, Wong Chung R, Rentinck I, Reinders-Messelink H, Willemen A, Ketelaar M. Gezin en Samenleving. In: Hadders-Algra M, Pangalila RF, Becher JG, van der Burg JJW, Hielkema T, de Moor J (red), Kinderrevalidatie, 6de druk. Assen: Koninklijke van Gorcum, 2021, p 307-322. ISBN: 978-90-232-5776-9

Nguyen L, Jack S, Ketelaar M, di Rezze B, Soper AK, Gorter JW. Understanding the experiences of youth with autism spectrum disorder in peer mentorship programs during the transition to adulthood: a meta-ethnography. Child: Care, Health and Development 2020; 46(6):667-681. doi: 10.1111/cch.12804.

Resch C, Van Kruijsbergen M, Ketelaar M, Hurks P, Adair B, Imms C, De Kloet A, Piskur B, Van Heugten C. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Developmental Medicine & Child Neurology 2020; 62: 434-444. doi: 10.1111/dmcn.14465

Smits DW, Van Meeteren K, Klem M, Alsem MW, Ketelaar M. Designing a Tool to Support Patient and Public Involvement in Research Projects: The Involvement Matrix. Research Involvement and Engagement 2020; 6: 30. doi: 10.1186/s40900-020-00188-4.

Smits DW, Gorter JW, Riddell CA, Voorman JM, Rosenbaum PL, Palisano RJ, Walter SD, Hanna SE, van Wely L, Ketelaar M. Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. Lancet Child Adolesc Health. 2019 Jun 6. pii: S2352-4642(19)30122-1. doi: 10.1016/S2352-4642(19)30122-1. [Epub ahead of print]

Gorp M van, Van Wely L, Dallmeijer AJ, de Groot V, Ketelaar M, Roebroeck ME; Perrin-Decade study group. Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol. 2019 Feb;61(2):194-203. doi: 10.1111/dmcn.14004.

Wintels SC, Smits DW, van Wesel F, Verheijden J, Ketelaar M; PERRIN PiP Study Group. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. . 2018 Dec; 21(6):1024-1034. doi: 10.1111/hex.12796.


Side Activities

  • Board member of CP-Net (2013 – present)

  • Member of the board of the Dutch Guideline for Cerebral Palsy; working group revision modules, Nederlandse Vereniging van Revalidatieartsen (2022 - present)
  • Member of the EACD (European Academy of Childhood Disability) committee Education and Training
  • Member of the Scientific Advisory Committee for CHARM, Research Centre for Habilitation and Rehabilitation Models & Services; University of Oslo, Norway

  • Member of the board for the Guideline Spastic Cerebral Palsy;  Nederlandse Vereniging van Revalidatieartsen, 2015

  • Member of the Steering Committee CP-Register Netherlands. Amsterdam UMC and CP Netherlands (2016 – present)

  • Regular reviewer for several international journals (including Developmental Medicine and Child Neurology; Child: Health, Care and Development; Disability and Rehabilitation; BMC Pediatrics; BMJ Open) and for several national and international foundations/granting agencies.

  • Former Board member of Scientific Committee European Academy of Childhood Disability (EACD) (2010-2017)

  • Former Board member of Dutch Academy of Childhood Disability (Dutch-ACD) (2011-2016)


Fellowship and Awards

- "Hoofdprijs" BCRM 2017. Outreachprijs speerpunt Hersenen UMC Utrecht. 

- KFA Price Innovation in Pediatric Rehabilitation (2010)

- ZonMw grants (Main applicant), 2000, 2004, 2007, 2010

- ISED Institute for the Study of Education and Human Development: Best scientific paper (1999)

Research Output (239)

Combined surveillance and treatment register for children with cerebral palsy:the protocol of the Netherlands CP register

Andringa Aukje, Veerkamp Kirsten, Roebroeck Marij, Ketelaar Marjolijn, Klem Martijn, Dekkers Hurnet, Voorman Jeanine, van Driel Marieke, Buizer Annemieke 28 Oct 2023, In: BMJ Open. 13 , p. 1-8

Roles, outcomes, and enablers within research partnerships:A rapid review of the literature on patient and public involvement and engagement in health research

Karlsson Anne Wettergren, Kragh-Sørensen Anne, Børgesen Kirsten, Behrens Karsten Erik, Andersen Torben, Kidholm Maiken Langhoff, Rothmann Mette Juel, Ketelaar Marjolijn, Janssens Astrid 15 Jun 2023, In: Research involvement and engagement. 9

Programs to Prepare Siblings for Future Roles to Support Their Brother or Sister with a Neurodevelopmental Disability:a Scoping Review

Nguyen Linda, Bootsma Jael, Ketelaar Marjolijn, Di Rezze Briano, Jack Susan M, Gorter Jan Willem 2023, In: Current developmental disorders reports. 10 , p. 47-79 33 p.

Exploring the "how" in research partnerships with young partners by experience:lessons learned in six projects from Canada, the Netherlands, and the United Kingdom

Nguyen Linda, van Oort Bente, Davis Hanae, van der Meulen Eline, Dawe-McCord Claire, Franklin Anita, Gorter Jan Willem, Morris Christopher, Ketelaar Marjolijn 17 Nov 2022, In: Research involvement and engagement. 8

Burden, anxiety and depressive symptoms in partners - course and predictors during the first two years after stroke

Cox Vincent C M, Welten Jennifer J E, Schepers Vera P M, Ketelaar Marjolijn, Kruithof Willeke J, van Heugten Caroline M, Visser-Meily Johanna M A 19 Jul 2022, In: Topics in Stroke Rehabilitation. 30 , p. 533-542 10 p.

Parental involvement and empowerment in paediatric critical care:Partnership is key!

van den Hoogen Agnes, Ketelaar Marjolijn May 2022, In: Nursing in critical care. 27 , p. 294-295 2 p.

‘This battle, between your gut feeling and your mind. Try to find the right balance’:Parental experiences of children with spinal muscular atrophy during COVID-19 pandemic

Lansink I L B Oude, van Stam P C C, Schafrat E C W M, Mocking M, Prins S D, Beelen A, Cuppen I, van der Pol W-L, Gorter J W, Ketelaar M 20 Apr 2022, In: Child: Care, Health and Development. 48 , p. 1062-1070 9 p.

Partnering to solve the participation puzzle

Ketelaar Marjolijn, Willis Claire, Rosenbaum Peter 4 Jan 2022, In: Disability and Rehabilitation. 44 , p. 1619-1619 1 p.

Building a culture of engagement at a research centre for childhood disability

Pozniak Kinga, Buchanan Francine, Cross Andrea, Crowson Jennifer, Galuppi Barb, Grahovac Danijela, Gorter Jan Willem, Hlyva Oksana, Ketelaar Marjolijn, Kraus de Camargo Olaf, Krpan Mesic Manda, Martens Rachel, McCauley Dayle, Nguyen Linda, Palisano Robert J, Phoenix Michelle, Putterman Connie, Rosenbaum Peter, Sprung Jennifer, Strohm Sonya, Teplicky Rachel, Thomson Donna, Wright Marilyn Dec 2021, In: Research involvement and engagement. 7 , p. 1-15

Parental perceptions on the value of neonatal brain MRI:Brain, Development and Imaging

Aalbers Vera W., Rapuc Sara, Dudink Jeroen, Tataranno Maria Luisa, Ketelaar Marjolijn, de Bijl-Marcus Karen A., Benders Manon J. N. L. Oct 2021, In: Pediatric Research. 90 , p. 7-7

All research output

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