dr. M. (Marjolijn) Ketelaar

Associate Professor

  • Rehabilitation, Physiotherapy Science & Sport

dr. M. (Marjolijn) Ketelaar

Research Programs


Marjolijn Ketelaar is Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation (, and Scientist at CanChild, Center for Childhood Disability Research, McMaster University, Hamilton, Canada (

Leader of research program on Family Empowerment and Program leader Pediatric Rehabilitation Research.

Her research interests include family-centered services, and the role of the family in the development of children with disabilities, with a focus on Brain Based Developmental Disabilities (e.g., Cerebral Palsy) and neuromuscular diseases (e.g., SMA).

She strongly believes in collaboration with patients, families, clinicians, and service providers in all stages of the research cycle, to optimise relevance and usefulness of research, and to improve clinical practice.

This is one of the main purposes of CP-Net, a network of parents and persons with CP, clinicians and researchers, she has founded founded in 2014, together with M. Klem (director patient organisation BOSK), Prof. J.G. Becher, Professor in Pediatric Rehabilitation Medicine.

She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths and adults with cerebral palsy





Research line

Neurodevelopmental disorders

Most recent key publications


Smits DW, Gorter JW, Riddell CA, Voorman JM, Rosenbaum PL, Palisano RJ, Walter SD, Hanna SE, van Wely L, Ketelaar M. Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. Lancet Child Adolesc Health. 2019 Jun 6. pii: S2352-4642(19)30122-1. doi: 10.1016/S2352-4642(19)30122-1. [Epub ahead of print]


Gorp M van, Van Wely L, Dallmeijer AJ, de Groot V, Ketelaar M, Roebroeck ME; Perrin-Decade study group. Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol. 2019 Feb;61(2):194-203. doi: 10.1111/dmcn.14004.


Wintels SC, Smits DW, van Wesel F, Verheijden J, Ketelaar M; PERRIN PiP Study Group. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. . 2018 Dec; 21(6):1024-1034. doi: 10.1111/hex.12796.


Ketelaar M, Bogossian A, Saini M, Visser-Meily A, Lach L. Assessment of the family environment in pediatric neurodisability: a state-of-the-art review. Dev Med Child Neurol. 2017 Mar;59(3):259-269.


Alsem MW, van Meeteren K, Verhoef M, Schmitz MJWM, Jongmans MJ, Meily-Visser JMA, Ketelaar M. Co-creation of a digital tool for the empowerment of parents of children with physical disabilities. Research Involvement and Engagement 2017 Dec 11;3:26.


Kruijsen-Terpstra AJA, Ketelaar M, Verschuren O, Gorter JW, Vos RC, Verheijden J, Jongmans MJ, Visser-Meily JMA, LEARN 2 MOVE 2-3 Study Group. Efficacy of three therapy approaches in pre-school children with cerebral palsy: A randomized controlled trial. Dev Med Child Neurol. 2016; 58: 758-766.


Ketelaar M, Gorter JW, Westers P, Hanna S, Verhoef M. Developmental trajectories of mobility and self-care capabilities in young children with cerebral palsy. J Pediatr. 2014 Apr;164(4):769-774. 

Side Activities

    • Board member of CP-Net (2013 – present)

    • Member of the Scientific Advisory Committee for CHARM, Research Centre for Habilitation and Rehabilitation Models & Services; University of Oslo, Norway

    • Member of the board for the Guideline Spastic Cerebral Palsy;  Nederlandse Vereniging van Revalidatieartsen, 2015

    • Member of the Steering Committee CP-Register Netherlands. VUMC Amsterdam and BOSK (2016 – present

    • Regular reviewer for several international journals (including Developmental Medicine and Child Neurology; Child: Health, Care and Development; Disability and Rehabilitation; BMC Pediatrics; BMJ Open) and for several national and international foundations/granting agencies.

    • Former Board member of Scientific Committee European Academy of Childhood Disability (EACD) (2010-2017)

    • Former Board member of Dutch Academy of Childhood Disability (Dutch-ACD) (2011-2016)


Fellowship and Awards

  • - "Hoofdprijs" BCRM 2017. Outreachprijs speerpunt Hersenen UMC Utrecht. 

    - KFA Price Innovation in Pediatric Rehabilitation (2010)

    - ZonMw grants (Main applicant), 2000, 2004, 2007, 2010

    - ISED Institute for the Study of Education and Human Development: Best scientific paper (1999)

Research Output (203)

Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years):a joint longitudinal analysis of cohort data from the Netherlands and Canada

Smits Dirk-Wouter, Gorter Jan Willem, Riddell Corinne A, Voorman Jeanine M, Rosenbaum Peter L, Palisano Robert J, Walter Stephen D, Hanna Steven E, van Wely Leontien, Ketelaar Marjolijn 6 jun 2019, In: The Lancet. Child & adolescent health. 3 , p. 548-557 10 p.

Family group decision-making interventions in adult healthcare and welfare:a systematic literature review of its key elements and effectiveness

Hillebregt Chantal F, Scholten Eline W M, Post Marcel W M, Visser-Meily Johanna M A, Ketelaar Marjolijn jun 2019, In: BMJ Open. 9

Translation and cross-cultural adaptation of the PEDI-CAT:Dutch version

Bos N, Engel M F, van Rijswijkn N J, Verheijden J M A, Coster W, Moed R, Ketelaar M 6 mrt 2019, In: Journal of Pediatric Rehabilitation Medicine. 12 , p. 57-64 8 p.

How do adolescents with cerebral palsy participate? Learning from their personal experiences

Wintels Sophie Catharina, Smits Dirk Wouter, van Wesel Floryt, Verheijden Johannes, Ketelaar Marjolijn, van der Leest Anna, de Groot Coosje, Snel Dion, van de Water Jesse, Sluiter Lauren, de Bruijn Nando, Janssen Nathan, Makkreel Nienke Heijne, Kramer Nikita, Bouma Piotr, Vergeer Sam, den Boer Thom, Voorman J. M., Dallmeijer A. J., Roebroeck M. E., Reinders-Messelink H. A., Gorter J. W., 1 dec 2018, In: Health Expectations. 21 , p. 1024-1034 11 p.

Perspectives of parents and nurses on the content validity of the Family Empowerment Scale for parents of children with a chronic condition:A mixed-methods study

Segers Elisabeth W., van den Hoogen Agnes, van Eerden Irene C., Hafsteinsdóttir Thora, Ketelaar Marjolijn 13 nov 2018, In: Child Care Health and Development. 45 , p. 111-120 10 p.

Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years:a prospective cohort study

van Gorp Marloes, Van Wely Leontien, Dallmeijer Annet J, de Groot Vincent, Ketelaar Marjolijn, Roebroeck Marij E, 6 sep 2018, In: Developmental Medicine and Child Neurology. 61 , p. 194-203 10 p.

Parental Presence and Activities in a Dutch Neonatal Intensive Care Unit:An Observational Study

Kamphorst Kim, Brouwer Annemieke J., Poslawsky Irina E., Ketelaar Marjolijn, Ockhuisen Hetty, Van Den Hoogen Agnes 1 jul 2018, In: Journal of Perinatal and Neonatal Nursing. 32 , p. E3-E10

Effects of Postural Management on Hip Migration in Children with Cerebral Palsy:A Systematic Review

Gmelig Meyling Christiaan, Ketelaar Marjolijn, Kuijper Marie Anne, Voorman Jeanine, Buizer Annemieke I. 1 apr 2018, In: Pediatric Physical Therapy. 30 , p. 82-91 10 p.

Evaluating the CARE4Carer Blended Care Intervention for Partners of Patients With Acquired Brain Injury:Protocol for a Randomized Controlled Trial

Cox Vincent Cm, Schepers Vera Pm, Ketelaar Marjolijn, van Heugten Caroline M, Visser-Meily Johanna Ma 16 feb 2018, In: JMIR Research Protocols. 7 9 p.

Effects of family group conferences among high-risk patients of chronic disability and their significant others:study protocol for a multicentre controlled trial

Hillebregt Chantal F, Scholten Eline W M, Ketelaar Marjolijn, Post Marcel W M, Visser-Meily Johanna M A 2018, In: BMJ open [E]. 8 , p. e018883

All Research Output (203)