dr. M. (Marjolijn) Ketelaar Associate Professor
- Rehabilitation, Physiotherapy Science & Sport
Marjolijn Ketelaar is Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation (www.kcrutrecht.nl), and Scientist at CanChild, Center for Childhood Disability Research, McMaster University, Hamilton, Canada (www.canchild.ca)
Leader of research program on Family Empowerment and Program leader Pediatric Rehabilitation Research.
Her research interests include family-centered services, and the role of the family in the development of children with disabilities, with a focus on Brain Based Developmental Disabilities (e.g., Cerebral Palsy) and neuromuscular diseases (e.g., SMA).
She strongly believes in collaboration with patients, families, clinicians, and service providers in all stages of the research cycle, to optimise relevance and usefulness of research, and to improve clinical practice.
This is one of the main purposes of CP-Net, a network of parents and persons with CP, clinicians and researchers, she has founded founded in 2014, together with M. Klem (director patient organisation BOSK), Prof. J.G. Becher, Professor in Pediatric Rehabilitation Medicine.
She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths and adults with cerebral palsy
Most recent key publications
Smits DW, Gorter JW, Riddell CA, Voorman JM, Rosenbaum PL, Palisano RJ, Walter SD, Hanna SE, van Wely L, Ketelaar M. Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. Lancet Child Adolesc Health. 2019 Jun 6. pii: S2352-4642(19)30122-1. doi: 10.1016/S2352-4642(19)30122-1. [Epub ahead of print]
Gorp M van, Van Wely L, Dallmeijer AJ, de Groot V, Ketelaar M, Roebroeck ME; Perrin-Decade study group. Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol. 2019 Feb;61(2):194-203. doi: 10.1111/dmcn.14004.
Wintels SC, Smits DW, van Wesel F, Verheijden J, Ketelaar M; PERRIN PiP Study Group. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. . 2018 Dec; 21(6):1024-1034. doi: 10.1111/hex.12796.
Ketelaar M, Bogossian A, Saini M, Visser-Meily A, Lach L. Assessment of the family environment in pediatric neurodisability: a state-of-the-art review. Dev Med Child Neurol. 2017 Mar;59(3):259-269.
Alsem MW, van Meeteren K, Verhoef M, Schmitz MJWM, Jongmans MJ, Meily-Visser JMA, Ketelaar M. Co-creation of a digital tool for the empowerment of parents of children with physical disabilities. Research Involvement and Engagement 2017 Dec 11;3:26.
Kruijsen-Terpstra AJA, Ketelaar M, Verschuren O, Gorter JW, Vos RC, Verheijden J, Jongmans MJ, Visser-Meily JMA, LEARN 2 MOVE 2-3 Study Group. Efficacy of three therapy approaches in pre-school children with cerebral palsy: A randomized controlled trial. Dev Med Child Neurol. 2016; 58: 758-766.
Ketelaar M, Gorter JW, Westers P, Hanna S, Verhoef M. Developmental trajectories of mobility and self-care capabilities in young children with cerebral palsy. J Pediatr. 2014 Apr;164(4):769-774.
Board member of CP-Net (2013 – present)
Member of the Scientific Advisory Committee for CHARM, Research Centre for Habilitation and Rehabilitation Models & Services; University of Oslo, Norway
Member of the board for the Guideline Spastic Cerebral Palsy; Nederlandse Vereniging van Revalidatieartsen, 2015
Member of the Steering Committee CP-Register Netherlands. VUMC Amsterdam and BOSK (2016 – present
Regular reviewer for several international journals (including Developmental Medicine and Child Neurology; Child: Health, Care and Development; Disability and Rehabilitation; BMC Pediatrics; BMJ Open) and for several national and international foundations/granting agencies.
Former Board member of Scientific Committee European Academy of Childhood Disability (EACD) (2010-2017)
Former Board member of Dutch Academy of Childhood Disability (Dutch-ACD) (2011-2016)
Fellowship and Awards
- "Hoofdprijs" BCRM 2017. Outreachprijs speerpunt Hersenen UMC Utrecht.
- KFA Price Innovation in Pediatric Rehabilitation (2010)
- ZonMw grants (Main applicant), 2000, 2004, 2007, 2010
- ISED Institute for the Study of Education and Human Development: Best scientific paper (1999)