Biography

Marjolijn Ketelaar is Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation (www.kcrutrecht.nl), and Scientist at CanChild, Center for Childhood Disability Research, McMaster University, Hamilton, Canada (www.canchild.ca)

Leader of research program on Family Empowerment and Program leader Pediatric Rehabilitation Research.


Her research interests include family-centered services, and the role of the family in the development of children with disabilities, with a focus on Brain Based Developmental Disabilities (e.g., Cerebral Palsy) and neuromuscular diseases (e.g., SMA).

She strongly believes in collaboration with patients, families, clinicians, and service providers in all stages of the research cycle, to optimise relevance and usefulness of research, and to improve clinical practice.

This is one of the main purposes of CP-Net, a network of parents and persons with CP, clinicians and researchers, she has founded founded in 2014, together with M. Klem (director patient organisation BOSK), Prof. J.G. Becher, Professor in Pediatric Rehabilitation Medicine.
www.CP-Net.nl

She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths and adults with cerebral palsy
www.perrin.nl

Publications:
www.researchgate.net

Twitter:
@Marjolijnketela

Research line

Neurodevelopmental disorders

Most recent key publications

Pozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter JW, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano RJ, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M. Building a culture of engagement at a research centre for childhood disability. Res Involv Engagem. 2021 Nov 6;7(1):78. doi: 10.1186/s40900-021-00319-5. PMID: 34742354.

Ketelaar M, Smits DW, Van Meeteren K, Klem M, Alsem MW. Involvement of young people and families in all stages of research: What, why and how? In: Imms C and Green D (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. London: MacKeith Press, 2020, p 105-117. ISBN: 9781911612162

 Alsem M, Wong Chung R, Rentinck I, Reinders-Messelink H, Willemen A, Ketelaar M. Gezin en Samenleving. In: Hadders-Algra M, Pangalila RF, Becher JG, van der Burg JJW, Hielkema T, de Moor J (red), Kinderrevalidatie, 6de druk. Assen: Koninklijke van Gorcum, 2021, p 307-322. ISBN: 978-90-232-5776-9

Nguyen L, Jack S, Ketelaar M, di Rezze B, Soper AK, Gorter JW. Understanding the experiences of youth with autism spectrum disorder in peer mentorship programs during the transition to adulthood: a meta-ethnography. Child: Care, Health and Development 2020; 46(6):667-681. doi: 10.1111/cch.12804.

Resch C, Van Kruijsbergen M, Ketelaar M, Hurks P, Adair B, Imms C, De Kloet A, Piskur B, Van Heugten C. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Developmental Medicine & Child Neurology 2020; 62: 434-444. doi: 10.1111/dmcn.14465

Smits DW, Van Meeteren K, Klem M, Alsem MW, Ketelaar M. Designing a Tool to Support Patient and Public Involvement in Research Projects: The Involvement Matrix. Research Involvement and Engagement 2020; 6: 30. doi: 10.1186/s40900-020-00188-4.

Smits DW, Gorter JW, Riddell CA, Voorman JM, Rosenbaum PL, Palisano RJ, Walter SD, Hanna SE, van Wely L, Ketelaar M. Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. Lancet Child Adolesc Health. 2019 Jun 6. pii: S2352-4642(19)30122-1. doi: 10.1016/S2352-4642(19)30122-1. [Epub ahead of print]

Gorp M van, Van Wely L, Dallmeijer AJ, de Groot V, Ketelaar M, Roebroeck ME; Perrin-Decade study group. Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol. 2019 Feb;61(2):194-203. doi: 10.1111/dmcn.14004.

Wintels SC, Smits DW, van Wesel F, Verheijden J, Ketelaar M; PERRIN PiP Study Group. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. . 2018 Dec; 21(6):1024-1034. doi: 10.1111/hex.12796.