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dr. A. van Royen-Kerkhof

dr. A. van Royen-Kerkhof

Associate Professor - medical
dr. A. van Royen-Kerkhof
  • Education Center
  • Immunology patient care

Biography

Biography

Dr A. van Royen-Kerkhof is senior consultant in Pediatric Immunology and Rheumatology at the department of Pediatric Immunolgy an Rheumatology of the Wilhelmina Children’s Hospital Utrecht, the Netherlands. She obtained her MD degree in 1990 at the Medical School of the University of Utrecht. She was trained as a paediatrician from 1991-1996 In Utrecht and Eindhoven (Catharina Ziekenhuis) In 2002 she achieved her specialist degree in Pediatric Immunolgy and Rheumatology. In 2005 she finished her PhD thesis on “Fcg-receptors in the clinics”.
The main focus of her clinical work is on Immune-Mediated Inflammatory Diseases, the research focus is on Juvenile Dermatomyositis.

Currently she is involved in the development of the Medical/Research Master programme SUMMA in the University Medical Center Utrecht (2016-present).

As a member of the Medical Ethical Committee she was involved in reviewing investigational protocols for research in children  and persons who are incapable of giving consent.

Currently she is involved in the national and international discussions on accessibility of (expensive) treatment in pediatric patients

Side Activities

International research collaborations

  • 2012 - present   SHARE project: Best practices for the treatment of pediatric rheumatic diseases,  as the chair of expert group on Juvenile dermatomyositis.
  • 2013 - present    Development of Optimal/minimal Core Set criteria in Juvenile Dermatomyositis (P.I. Liza McCann, Alderhey Hospital Liverpool, UK)
  • 2010 - present    BrainWorks: a multicenter data-base for juvenile central nerve system vasculitis.
  • 2012 - present    Collaboration with dr Lisa Rider (NIH/NHS, Bethesda, USA) and dr Adam Huber (Dalhousie University, Halifax, Canada) on Juvenile Dermatomyositis (database analysis for prognostic factors of JDM)

Membership National Societies:

  • Member of Dutch Society of Paediatricians (Nederlandse Vereniging Kindergeneeskunde NVK)
    • 2011 - present:  vice-chair of “Werkgroep Dure en Weesgeneesmiddelen”
    • 2014 - present:  PI of SKMS project “Beschrijving off-label indicaties Dure en Weesgeneesmiddelen voor het Kinderformularium”
  • 2010 - present: Chair of Dutch society for Paediatric Rheumatology (Nederlandse Vereniging voor Kinderreumatologie NVKR);
  • Federatie Medisch Specialisten:
  • member of  working party “Geneesmiddelen”
  • 2015-present: member of working party  “Dure geneesmiddelen”      
  • Member of Dutch society of Immunodeficiencies (Werkgroep Immuundeficiënties WID)
  • Member Board Society of Immune Mediated Inflammatory      diseases
  • Membership “Interuniversitaire Werkgroep Autoinflammatie”

Membership International Societies:

  • 2008 - present: Member Pediatric Rheumatology Society  (PReS)
  • 2010 - present: Chair Working Party European Working Party Juvenile Dermatomyositis (PReS),
  • 2007 - present: Member European Society of immunodeficiencies (ESID)
  • 2015 - present: FULLPHASE Medical Advisory Board

 Other related activities

  • 2007- present: Medical Advisor “KAISZ”, a society for parents and children with auto-immune and auto-inflammatory systemic diseases  
  • 2011- present: Medical Advisor VSN (Vereniging Spierziekten Nederland)
  • 2006- present: Boardmember Sophie Beuninck Stichting,

Fellowship and Awards

  • Stichting KAISZ (WKZ estafetteloop):                                                 5000, -
  • OBI project (Novartis):                                                                      10.000,-
  • Guidelines NVKR (Abbott):                                                                 16.000,-
  • Basic research (Regulatory T cells in Juvenile Dermatomyositis)            30.000,-
  • (De Bas Stichting)
  • Prinses Beatrix Spierfonds:.                                                               185.955,-

 (Biomarkers voor ziekteactiviteit bij Juveniele Dermatomyositis)

  • SKMS project       Dure en Weesgeneesmiddelen                                60.000,-

Awards of AIO
Judith Wienke award Young Investigator Meeting EULAR/PReS, Rom4 Italy, June 9th 2015:

CXCL10, TNFR2 and Galectin-9 correlate with disease activity in Juvenile Dermatomyositis.

Research Output (127)

Daily life participation in childhood chronic disease:A qualitative study on the child's and parent's perspective

Nap-Van Der Vlist Merel M., Berkelbach Van Der Sprenkel Emma E., Nijhof Linde N., Grootenhuis Martha A., Van Der Ent Cornelis K., Swart Joost F., Van Royen-Kerkhof Annet, Van Grotel Martine, Van De Putte Elise M., Nijhof Sanne L., Kars Marijke C. 18 May 2021, In: BMJ paediatrics open. 5 , p. 1-9

Consensus-based recommendations for the management of juvenile systemic sclerosis

Foeldvari Ivan, Culpo Roberta, Sperotto Francesca, Anton Jordi, Avcin Tadej, Baildam Eileen, Boros Christina, Chaitow Jeffrey, Constantin Tamas, Kasapcopur Ozgur, Knupp Feitosa de Oliveira Sheila, Pilkington Clarissa, Toplak Natasa, van Royen Annet, Saad Magalhaes Claudia, Vastert Sebastiaan J, Wulffraat Nico, Zulian Francesco 4 Nov 2020, In: Rheumatology (Oxford, England). 60 , p. 1651-1658 8 p.

€ 279.538,- Voor vervolgonderzoek naar Juveniele dermatomyositis

van Royen Annet 17 Sep 2020,

European consensus-based recommendations for the diagnosis and treatment of rare paediatric vasculitides – the SHARE initiative:This is a correction to: Rheumatology, Volume 58, Issue 4, April 2019, Pages 656–671, https://doi.org/10.1093/rheumatology/key322

De Graeff Nienke, Groot Noortje, Brogan Paul, Ozen Seza, Avcin Tadej, Bader-Meunier Brigitte, Dolezalova Pavla, Feldman Brian M., Kone-Paut Isabelle, Lahdenne Pekka, Marks Stephen D., McCann Liza, Pilkington Clarissa, Ravelli Angelo, Van Royen Annet, Uziel Yosef, Vastert Bas, Wulffraat Nico, Kamphuis Sylvia, Beresford Michael W. Apr 2020, In: Rheumatology (United Kingdom). 59 , p. 919 1 p.

Annet van Royen benoemd tot Senior Fellow

van Royen Annet 24 Feb 2020,

Consensus-based recommendations for the management of juvenile localised scleroderma

Zulian Francesco, Culpo Roberta, Sperotto Francesca, Anton Jordi, Avcin Tadej, Baildam Eileen M., Boros Christina, Chaitow Jeffrey, Constantin Tamàs, Kasapcopur Ozgur, Knupp Feitosa De Oliveira Sheila, Pilkington Clarissa A., Russo Ricardo, Toplak Natasa, Van Royen Annet, Saad Magalhães Claudia, Vastert Sebastiaan J., Wulffraat Nico M., Foeldvari Ivan 1 Aug 2019, In: Annals of the Rheumatic Diseases. 78 , p. 1019-1024 6 p.

The identification of CCL18 as biomarker of disease activity in localized scleroderma

Mertens J. S., de Jong E. M.G.J., van den Hoogen L. L., Wienke J., Thurlings R. M., Seyger M. M.B., Hoppenreijs E. P.A.H., Wijngaarde C. A., van Vlijmen-Willems I. M.J.J., van den Bogaard E., Giovannone B., van Wijk F., van Royen-Kerkhof A., Marut W., Radstake T. R.D. 1 Jul 2019, In: Journal of Autoimmunity. 101 , p. 86-93 8 p.

Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis:A scoping review

Kip Michelle M.A., Currie Gillian, Marshall Deborah A., Grazziotin Lago Luiza, Twilt Marinka, Vastert Sebastiaan J., Swart Joost F., Wulffraat Nico, Yeung Rae S.M., Benseler Susanne M., Ijzerman Maarten J., Bonsel Gouke, Feldman Brian M., Hoppenreijs Esther, Lang Bianca, Leblanc Claire, Sepulveda Ana, Toupin-April Karine, Van Pelt Philomine, Van Royen-Kerkhof Annet 6 May 2019, In: Pediatric Rheumatology. 17 13 p.

European consensus-based recommendations for diagnosis and treatment of immunoglobulin A vasculitis-the SHARE initiative

Ozen Seza, Marks Stephen D, Brogan Paul, Groot Noortje, de Graeff Nienke, Avcin Tadej, Bader-Meunier Brigitte, Dolezalova Pavla, Feldman Brian M, Kone-Paut Isabelle, Lahdenne Pekka, McCann Liza, Pilkington Clarissa, Ravelli Angelo, van Royen Annet, Uziel Yosef, Vastert Bas, Wulffraat Nico, Kamphuis Sylvia, Beresford Michael W 16 Mar 2019, In: Rheumatology (Oxford, England). 58 , p. 1607-1616 10 p.

Galectin-9 and CXCL10 as biomarkers for disease activity in juvenile dermatomyositis:a longitudinal cohort study and multi-cohort validation

Wienke Judith, Bellutti Enders Felicitas, Lim Johan, Mertens Jorre S., van den Hoogen Luuk L., Wijngaarde Camiel A., Yeo Joo Guan, Meyer Alain, Otten Henny G., Fritsch-Stork Ruth D.E., Kamphuis Sylvia S.M., Hoppenreijs Esther P.A.H., Armbrust Wineke, van den Berg J. Merlijn, Hissink Muller Petra C.E., Tekstra Janneke, Hoogendijk Jessica E., Deakin Claire T., de Jager Wilco, van Roon Joël A.G., van der Pol W. Ludo, Nistala Kiran, Pilkington Clarissa, de Visser Marianne, Arkachaisri Thaschawee, Radstake Timothy R.D.J., van der Kooi Anneke J., Nierkens Stefan, Wedderburn Lucy R., van Royen-Kerkhof Annet, van Wijk Femke 12 Mar 2019, In: Arthritis & Rheumatology. 71 , p. 1377-1390 14 p.

All research output

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